The Value of Advocacy and IME Collaboration to Enhance Patient Engagement and Improve Knowledge
Track: Full Session
A panel comprising speakers from 2 advocacy groups and an IME organization will present 2 case studies to illustrate the value and impact of Advocacy Organization and IME collaboration to educate and engage patients. Advocacy group panel members will also present perspectives from patients participating in the educational initiatives. In 2015, Medscape Education/WebMD Education established partnerships with Boomer Esiason Foundation (BEF) (Case 1) in the development of an online patient education module focusing on cystic fibrosis (CF), and with Crohn’s & Colitis Foundation of America (CCFA) (Case 2) to develop an aligned healthcare professional and patient education initiative focusing on short bowel syndrome (SBS). The patient education modules were hosted on WebMD Education and the healthcare professional education on Medscape Education, with unique links to the activities from collaborating advocacy organizations’ web portals. Strategically-planned outreach campaigns, including print/email announcements as well as social media posts from the collaborating patient advocacy organizations generated awareness of, and engagement, with the patient education modules by the population of patients/care partners experiencing the specific condition. Each 5-7 minute module included demographic as well as pre- and post-activity questions to ascertain impact of the education. Participants who finished the module received a certificate of completion. The module, Working with Your CF Care Team: How to Move Up to Adult Care, launched February 11, 2015, and engaged 11,734 learners and 1840 of whom completed all pre- and post-activity questions. More than 2000 participants identified themselves as having CF, and nearly 2400 participants were family members of someone with CF or a care partner. Analysis of pre- and post-activity responses points to a 11.6% absolute value increase in knowledge of patient/care partner self-care/care strategies. Further, nearly 200 participants downloaded supplemental patient resources provided by BEF. Case 2: Managing Short Bowel Syndrome: Tips for Patients and Care Partners, launched November 11, 2015, and engaged 5859 learners and 2085 of whom completed all pre- and post-activity questions. Nearly 2900 participants identified themselves as having SBS, and more than 600 participants were family members of someone with SBS or a care partner. As with the CF module, analysis of pre- and post-activity responses points to a 52.6% absolute value increase (insert p value, CCFA Q1) in knowledge of patient care strategies. Approximately 250 participants downloaded related resources offered by CCFA. Qualitative outcomes will be shared regarding patient experiences captured via social media. Through these partnerships and the combined efforts to reach the specific population of patients and care partners experiencing their respective condition, it is evident that patients and care partners have improved awareness and knowledge. The session will conclude with a discussion of lessons learned and best practices related to education and its impact to patient outcomes.